His Story
A journey through fear, faith, and finally — answers.
Every line of this timeline is a day his family will never forget. We share it so other parents don't have to walk the same road blindly.
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1
Age 2 1/2
The first twitch
It started small — a tremor in his right hand while drawing. We assumed he was just tired.
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2
3 months later
Traditional healers
Family elders insisted it was spiritual. We tried herbs, prayers, rituals. The seizures grew stronger.
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3
6 months in
Misdiagnosed with PKND
A clinic suggested Paroxysmal Kinesigenic Neurological Disorder. The medication didn't work.
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4
9 months in
Labelled 'just epilepsy'
Another doctor prescribed standard anti-seizure medication. He continued to deteriorate, losing strength on his right side.
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5
Age 3 1/2
The right diagnosis
A pediatric neurologist ordered an MRI. The verdict: Rasmussen's encephalitis — a rare inflammation of one brain hemisphere.
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6
Two weeks later
The hemispherectomy
The only treatment that stops the disease: surgically disconnecting the affected hemisphere. A terrifying, life-saving choice.
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7
Today
Learning to run again
He walks with a slight limp. He laughs every day. He still wears his red jersey. And he still dreams.
"We only needed neurologists not traditional remedies. The valuable time and money lost could have been directed toward the specialized care our child needed. If sharing our story saves one child that time, it was worth telling."
— His mother