Esme Nagami
Opsoclonus Myoclonus Ataxia Syndrome (OMAS)
She is a 2-year-old girl living with a neurological disorder known as Opsoclonus Myoclonus Ataxia Syndrome (OMAS). OMAS is a rare but serious immune-mediated neurological condition that primarily affects young children. She was diagnosed at the age of 1 year and 8 months. The condition causes rapid, uncontrolled eye movements, involuntary body jerking, and severe difficulties with balance and coordination, leaving her unable to walk independently. Through this fundraising effort, we are seeking support to help cover the cost of her daily medication while doctors work toward a long-term treatment solution. The financial burden of ongoing treatment has become overwhelming for her family. Every contribution, no matter how small, brings hope and helps give this little girl a chance at a healthier future.